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Owing to the House, my family could stay together and have time to take good care of my sons

August 25, 2014 Misako Terada

Sota is a boy who will turn 5 years old soon.
He carries out his daily lives in a wheelchair due to spina bifida.

In the summer of 2009, I was 6 months pregnant with Sota when the doctor discovered his disorder. It was the saddest summer in my entire life --- I cried through the summer.
I contemplated on many things…future of my family, and whether or not I’d be able to accept a baby with a disorder. My doctor told me that I will love my baby no matter what once I see him/her. At that time, the doctors’ words just sounded so idealistic and unreal. However, as the delivery day approached, I tried to gradually change my mindset and maintain positive attitude.

I gave a birth to Sota by Caesarean operation. Sota was found to have another disorder immediately after his birth, therefore, underwent a 10-hour surgical operation a day after he come into this world. The operation took place without my knowledge or supervision, as I was also bedridden from my own surgery. My husband heard doctor’s briefings and did everything else alone. Sota and I were in separate hospitals, so my husband traveled between the two hospitals to deliver my breast milk. In a way, he is the one who first “breastfed” Sota. This experience fostered him paternity love & bond to Sota, and awakened him to become a real father whether he liked it or not. Even to this day, I feel that Sota is helping us grow into real father and mother. Despite many anxieties and worries I had before and after his birth, I am now very happy and grateful for being able to have Sota in our life.
So far, Sota had 9 operations, and many more hospital stays. Sota has a younger brother named Kaito, now 1 year old. If RMH didn’t exist, we didn’t know what to do with Kaito. We were ready to make daily trips to the hospital but Kaito wasn’t. We probably had no choice but to leave Kaito with my parents --- leaving both of my sons missing their mother when they need me the most. Of course help was available from my husband and my mother, but it meant very special to be able to stay together as a family at RMH.
Kaito is actually very shy; however, thanks to friendly interactions with volunteer staff and other visitors, he has become a very friendly child. He thinks RMH is his own house and is very happy to play with other visitors/staff. After all, he is the one who spends the longest time at RMH, so he is the best person to talk to if you want to know how great RMH is!

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    The volunteers and House staff gave us a lift. We appreciate it.

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    I can go and see my son every day. My son smiles at me. RMH is the place that has made all these possible.

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    Relationships and Encounters with People at the House Are Treasure for Our Family.

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    The House always provides a strong support to us.

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    Owing to the relaxing House, I could take good care of my daughter.

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    My gratitude goes to the second home which has brought the happiness of being with my kid.

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    The time at the House healed our depressing hearts.

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    Marin Tanioka

    The House brought a smile to my daughter and made her say “I feel safe with you, mother. It’s fun to stay here!”

  • Michiru Iizuka Miho Nakamura

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    Miho Nakamura

    Communicating with mothers in a similar environment are soothing.

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    Thanks to the House, our family can share a happy time in a while.

  • Yukie Fujiwara

    Yukie Fujiwara

    I am happy to lead an ordinary life even my child is hospitalized.

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